WHO CAN HELP?
As many of our members may tell you, when you or a family member are first diagnosed with a brain tumour, it is difficult to know where you can go for help.
The Brain Tumour Association of WA – as a voluntary organisation – aims to bring people together. But there is also a range of services available from government agencies, non for profit service organisations and other groups, which can provide valuable advice or assistance within the home.
The following are some of these services recommended/used by our membership:
WA Cancer and Palliative Care Network – Cancer Nurse Coordinator, Neurological Cancer
A free statewide service provided by the Health Department’s WA Cancer and Palliative Care Network for people affected by cancer. As part of this network a specialist nurse for brain tumour patients is employed.
The coordinator can
- provide and explain information on your diagnosis and treatment
- liaise with your treating hospital and other services
- assist you through the health care system and find the best services to help you and your family
- act as a central point of contact; and
- coordinate appointments.
To contact the coordinator, please call them on 0400 021 649. For more information, please click here WA Cancer and Palliative Care Network.
Brain Tumour Alliance Australia - Freecall Number 1800 857 221
The Brain Tumour Alliance Australia (BTAA) is the only national brain tumour patient and caregiver organisation in Australia. It was established in late 2008 by a group of brain tumour patients and current and former caregivers.
Denis Strangman, Secretary of the Alliance and Chair of the International Brain Tumour Alliance, is a wealth of information on current treatments for brain cancer and has always been prepared to give advice. He has been very helpful to a number of our members.
James Croft Foundation
Named after a young and courageous 12 year old boy, James Crofts, who fought the most agressive form of brain tumour – glioblastoma multiforma – the foundation works to spread hope to those families in need, with children who had been diagnosed with brain cancer or brain tumours.
This Perth based foundation provides a range of services, including financial assistance and counseling where the costs of treatment are prohibitive. To contact the foundation, click here to go to their website.
For palliative care and respite assistance, please click on the For Carers section on this website.